Congress Script
My good friend, Mayuri Saxena has ALS (or instead mention anyone you know who has ALS), and is fighting for her life. I’m calling to ask your office to co-sponsor the ACT for ALS bill, House Bill 3537. That’s 3-5-3-7. ALS is 100% fatal and untreatable. This bill can change that. It will help people who are Dying Waiting get access to potentially life-changing treatments that are stuck in clinical trials.
(wait for their response, which will either be “Thanks I’ll forward that” or “what about the Bill” or they’ll ask for your contact, including your address to check if you’re a resident/constituent)
Reply with;
I’m actually part of a patient-led grassroots effort advocating for ALS patients in your district. While I may not be a resident, my good friend [FRIEND’S NAME] & thousands of others can no longer speak or type to reach out to their Congresspeople. . .
We’re looking to urgently pass this bill during this session. In the House last session, this Bill had 279 bi-partisan co-sponsors in 3 months. The new House Bill already has over 140 cosponsors in a few weeks!
Can you please have your Legislative Director, or a Senior member of your Health Legislative staff, urgently look at bill H.R.3537 and ask the Representative to please co-sponsor it soon? Mayuri is a good friend, and her prognosis isn’t good – but she and so many other dying ALS patients could benefit from this bill.
For that - you can contact my friend’s brother - Mayank if you want.
(if they want, give them my info Mayank444@yahoo.com or cell 646-267-7613).
You can always reach out to Allison Jarus at Congressman Quigley’s office for more questions about the mechanics of the Bill, and to add the Representative's name as a co-sponsor.