Great! You're now ready for Phase 2...

First of all, I'm super grateful for your help in this. Every little bit counts and your work is a huge help. In case you want to do more, there are two things you can do...

1) Share this website with your friends

If you can help mobilize 10 of your friends through Facebook to take the same action that you just did -- we can start a movement together. Just click on the button below to share it. Feel free to tag me!

2) Email/Call More Representatives

Now that you've covered your own state, the next state is to email/call others. Pick the states nearest to you and work through the list. For your reference, call script is here too.

CUSTOM JAVASCRIPT / HTML

Questions? Updates? Have representatives gotten back to you committing? Please email us at: mayank444@yahoo.com and simply forward the email.

Call Script

OK! Once you've emailed additional reps, then you should place a call. Here's a simple script to use and use the phone numbers in the master list👇

Senate Script

My good friend, Mayuri Saxena has ALS (or instead mention anyone you know who has ALS), and is fighting for her life. I’m calling to ask the Senator to co-sponsor the ACT for ALS bill, Senate Bill 1813. That’s 1-8-1-3. ALS is 100% fatal and untreatable. This bill can change that. It will help people who are Dying Waiting get access to potentially life-changing treatments that are stuck in clinical trials.

(wait for their response, which will either be “Thanks I’ll forward that” or “what about the Bill” or they’ll ask for your contact, including your address to check if you’re a resident/constituent)

 Reply with;

I’m actually part of a patient-led grassroots effort advocating for ALS patients in your state. While I may not be a resident, my good friend Mayuri Saxena & thousands of others can no longer speak or type to reach out to their Senators. . .

We’re fighting to pass this bill before the end of the year. It is the Top 100 most cosponsored bills in the last half century! In the House, the Bill has 326 cosponsors & passed UNANIMOUSLY out of committee. We expect a vote on the House floor before the end of the year. Now the ball is in the Senate's court. As of Nov 10th, S.1813 has over 41 sponsors in the Senate. That's why we need the Senator's help urgently.

Can you please have your Legislative Director, or SENIOR HEALTH staffer look at bill S.1813 and ask the Senator to please co-sponsor it?

(Mayuri) is a good friend, and her prognosis isn’t good – but she and so many other dying ALS patients could benefit from this bill.

If you have any questions, you can contact my friend’s brother, Mayank Saxena.

(if they want, give them Mayank's info Mayank444@yahoo.com or cell 646-267-7613).

Congress Script

My good friend, Mayuri Saxena has ALS (or instead mention anyone you know who has ALS), and is fighting for her life. I’m calling to ask your office to co-sponsor the ACT for ALS bill, House Bill 3537. That’s 3-5-3-7. ALS is 100% fatal and untreatable. This bill can change that. It will help people who are Dying Waiting get access to potentially life-changing treatments that are stuck in clinical trials.

 Reply with;

I’m actually part of a patient-led grassroots effort advocating for ALS patients in your district. While I may not be a resident, my good friend [FRIEND’S NAME] & thousands of others can no longer speak or type to reach out to their Congresspeople. . .

We’re looking to urgently pass this bill during this session. In the House last session, this Bill had 279 bi-partisan co-sponsors in 3 months. The new House Bill already has over 140 cosponsors in a few weeks!

Can you please have your Legislative Director, or a Senior member of your Health Legislative staff, urgently look at bill H.R.3537 and ask the Representative to please co-sponsor it soon? Mayuri is a good friend, and her prognosis isn’t good – but she and so many other dying ALS patients could benefit from this bill.

For that - you can contact my friend’s brother - Mayank if you want.

(if they want, give them my info Mayank444@yahoo.com or cell 646-267-7613).

You can always reach out to Allison Jarus at Congressman Quigley’s office for more questions about the mechanics of the Bill, and to add the Representative's name as a co-sponsor.

belief x discipline makes you unstoppable

Great! You're now ready for Phase 2...

1) Share this website with your friends

2) Email/Call More Representatives

Call Script

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